November 30, 2021, 19:21

    Teenager has rare condition that means he can’t store fat and will never put on weight

    Teenager has rare condition that means he can’t store fat and will never put on weight

    A teenager has been diagnosed with a rare condition that means his body cannot store fat, so he can never put on weight.

    Dylan Lombard, 18, was born with MDP – Mandibular Hypoplasia, with Deafness and Progeroid Features – but his diagnosis only arrived when he was 10.

    He said his mum became worried when he was 18 months old because he was losing weight, but it took doctors 10 years to diagnose him because the condition is rare – affecting just 13 people worldwide.

    MDP is an extremely rare metabolic disorder that prevents fatty tissue from being stored underneath the skin.

    It results in a small lower jaw, ears, deafness and tightening of the skin.

    Dylan's mum started getting worried when he was 18 months old because he was losing weight
    (

    Image:
    Dylan Lombard / Caters News Agency)

    Dylan said: "I was born with this condition, but it did not become visible until I was 18 months old.

    "My mum was seeing me drop a lot of weight and became understandably very worried.

    "It took doctor's 10 years in order diagnose me with this condition after constant visits because of its obscurity.

    "There are only 12 other people in the world who have MDP besides me, but when we got the diagnosis, we were just relieved because we finally knew what it was."

    The condition's physical effects have meant that Dylan has often experienced people staring or commenting on his appearance.

    Dylan wants to raise awareness of his rare condition
    (

    Image:
    Dylan Lombard / Caters News Agency)

    However, he said he learnt to not let it affect him as he got older.

    He added: "I surround myself with those who support me and love me for who I am which is the best feeling in the world."

    Dylan now is passionate about spreading awareness of his condition and uses his platform to keep the public aware of MDP.

    He explained: "I think I am at a stage in my life where I just really want to help educate people about my condition.

    "I love to tell my story, reach out and connect with people from all around the world.

    "When I do, I honestly believe it makes me stronger and a more confident person."

    Dylan is one of 13 people who have the condition worldwide
    (

    Image:
    Dylan Lombard / Caters News Agency)

    Due to MDP, Dylan is not able to do take part in many physical activities such as contact sports, but he managed to find his passion at the age of 11 in photography.

    Dylan explained: " I was out walking on a rainy day and took a few pictures on my phone to show my parents which they were really amazed by.

    "They encouraged me to take more, and I have been snapping ever since.

    "At 15, my mum bought me my first camera and I haven't looked back since, photography is just the most incredible thing to me."

    The teenager was diagnosed with MDP when he was 10 years old
    (

    Image:
    Dylan Lombard / Caters News Agency)

    Dylan takes his inspiration from his city, capturing the essence of Glasgow through his perception.

    He added: "The weather may not be the best, but I love living in Scotland. I am certainly Glaswegian and proud, and I love showing what my city has to offer.

    "When I take a photo, it stays with me forever and that feeling is just indescribable."

    Dylan believes that everybody, no matter who they are, has the ability to be the best version of themselves.

    He said: "I am a lot more than just my condition, which is why I feel it is so important to share my story.

    "Nobody should ever be afraid of who they are, and it is important to just keep doing what makes you happy. Perseverance is key, never give up."

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    Sourse: mirror.co.uk

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